ECO has just participated in a review meeting of the Bulgarian cleft nurse network in Plovdiv 18-19 January 2019. The network of 15 nurses is a unique resource developed by ECO and the Bulgarian parent association ALA to support...
A new EU Erasmus+ funded project aimed at helping health professionals better support children and adults with disfiguring conditions kicked off in Thessaloniki, Greece on 15 December. The two-year project comprises partners from Estonia, Greece, Cyprus, Norway, Romania, Slovenia,...
Executive Director Gareth Davies has been promoting the patient’s voice at two meetings of the new European Reference Networks in Uppsala in Sweden and in Brussels. The Networks were established in 2017 to bring together specialists in rare diseases...
The European Cleft Organisation (ECO) is pleased to be a founder member of a new global charity which launched on 5 November. Face Equality International, (FEI) is a unique alliance of charities and non-governmental organisations (NGOs) which want to...
Executive Director Gareth Davies was in Bucharest, Romania, attending the third transnational meeting of the Cutting Edge project, a programme supported by an Erasmus + grant and headed up by the University of Kristianstadin Sweden. Other partners include Norway, Romania, Bulgaria,...
The first conference of the new EU funded Action (COST 16234) looking at patient access to cleft care across Europe took place in Niš, Serbia on 14 and 15 September. ECO is driving this programme which aims to ensure that...
We were honoured that a Dutch Health Ministry representative, Paul Boom, was present for the launch of ECOs directory of cleft services in Europe, the European Cleft Gateway which was officially re-launched on 8 June in Utrecht, Netherlands. The...
ECO was delighted to be a key participant in a delegation to the European Parliament on 27 February 2018. The breakfast event, hosted by MEP Sean Kelly and attended by a diverse audience of other MEPs and policy makers,...
It is hard to believe that we are celebrating our 10th anniversary. Although it does seem a long time since a small group of us met in Anton Vorderman’s front room in the Hague to discuss ECO’s remit and...
An international workshop funded by the European Science Foundation (ESF) was organised at the European Committee for Standardisation (CEN) in Brussels on 21 March. The delegates comprised those who helped put the guidelines together as well as senior clinicians,...