We are delighted to announce that the UK-based Cleft Collective has now registered on ECO’s European Cleft Gateway The Collective has a huge pool of data that can be accessed (on request) by researchers. The Cleft Collective cohort...
Our Early Cleft Care Training Programme (ECTP), funded by an Erasmus + EU grant, has now sucessfully concluded with all project results appearing on the project website www.cleftectp.com. The project was showcased at the Sophia Children’s Hospital in Rotterdam...
The kick-off meeting for an exciting new Erasmus+ project has just taken place at ECO’s head office in Rijswijk on Wednesday 20 November 2019. 17 participants attended from 9 partner countries including the Netherlands, Bulgaria, Serbia, Norway, Romania, Estonia,...
ECO Executive Director , Gareth Davies, is Vice Chair of the Action which is looking at how we can improve equality of access to cleft care for everyone in Europe. The Action began in 2018 and you can view...
To date we have worked with partners in Bulgaria, Greece, Lithuania, Latvia, Romania, Spain, Serbia and Slovenia. We have been invited to carry out training in Macedonia and Ukraine and all these countries will be prioritized in our plans...
ECO has been working with a partner, the Bulgarian Association of Children with Clefts and their Parents (ALA), in Plovdiv, Bulgaria, since 2009. ALA is a registered charity which supports the work of the cleft team at St George’s...
In Romania ECO is pleased to report the continuing activities of RomaniaCleft, especially in developing dialogue with other countries on all aspects of cleft care. RomaniaCleft, set up in 2012 two years ago as Romania’s first national multidisciplinary cleft...
Following an information meeting with the newly-established federation of Spanish patient support groups, we ran a pilot ‘front-line’ nurse/midwife training course in Bilbao in January 2013. The cleft team were keen to support this and have a long history...
We are approaching the final stages of a process that started more than a year ago – to draw up a set of recommendations on early cleft care. There have been three meetings of our Technical Committee (CEN 424)...
Dates have been agreed for a weekend training programme in Vilnius for January 2015. Nearly all of the 30-40 babies born with clefts each year in Lithuania are treated at the Zalgiris Clinic in Vilnius, with more complex cases...